INTRODUCTION: Social media platforms are used for support and getting health information to manage or overcome disease. Since 2006, The Noordhoff Craniofacial Foundation Philippines, Inc. (NCFP) has provided subsidies for treatment of cleft lip and palate to indigent patients. In 2018, it began utilizing Facebook and Messenger to foster supportive environments for patient communication and education. The study objective was to determine the perception of using these platforms.
METHODS: A quantitative descriptive study design was employed. Cleft lip and palate patients or their caregivers answered a 6-part online questionnaire. The survey included questions on general information and their perception of the NCFP platforms. Responses were collected in 4 weeks, and data were analyzed using STATA ver.16.0.
RESULTS: The 138 participants were members of 1, 2, or all 3 groups. Of the participants, 90.6% (125) were part of the Facebook Group (Group I), 12.3% (17) were part of the Peer Messenger Group (Group II), and 21.7% (30) were part of the Parents’ Messenger Group (Group III). Group I was found to be the easiest to use by 76.8% of the respondents. In total, 94.6% of Group I, 48.5% of Group II, and 47.3% of Group III thought these groups helped them in treatment decision-making. The 45%, 25.7%, and 28% for Groups I, II, and III, respectively felt a decrease in their perceived need for in-person visits. Patient satisfaction was 95.4%, 50.5%, and 52.7% in Groups I, II, and III, respectively.
CONCLUSION: The perception on the use of social media platforms is different among the 3 groups. Group I ranked the highest in ease of use and help with decision-making but less than half the participants found that the 3 groups led to a decrease in the perceived need for in-person visits. Overall, their experience of using social media groups was positive.